A practical patient-perspective guide for dealing and healing with hypermobile Ehlers Danlos syndrome (EDS), POTS, and comorbidities.
Tired of being told there’s no treatment for your illness? That it’s "all in your head" or that your pain can’t be real because you’re too young/old/pretty/bright/healthy/normal to have a chronic disorder? Maybe you've been dismissed by doctors and disbelieved by loved ones that your suffering is even real?
What if instead, there was someone who knew what you were going through and could teach you strategies for coping with rare chronic illness?
This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) – from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone.
In Holding It All Together When You’re Hypermobile, Christie Cox explores not only the physical effects of hEDS but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she’s experienced her body’s betrayal and suffered through the myriad complications stemming from this disease. But she’s also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope.
As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you’ll discover…

A healing prescription for the miracle of the modern mindset
A look at the latest scientific research on the edge of answers
Q&A interviews with expert doctors and advocacy groups
Guidance for how to help loved ones better understand hEDS
Christie’s own inspiring story of how she came to live her best life
Lessons, questions and quotes to inspire your search for answers

Early Advance Reader Reviews:

"Oh if I had something like this 12+ years ago, life would have been so much easier and so less stressful. I don't believe that there is anything like your book out there."

"I get exhausted reading all the medically technical studies, etc, so I really think this will be helpful for many Zebras to digest, implement, and become more empowered as they apply the various tools you've suggested. Plus you've provided many links to things to allow for further investigation into various subjects. You've really done an amazing job putting this together!!"

Holding It All Together When You’re Hypermobilegives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better. To learn more about Christie’s book, visit www.holdingitalltogether.com. If you want to learn more about Christie’s patient advocacy work, visit www.journey2joyous.com

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